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Want the most up-to-date health and wellness information for your loved one with Down syndrome? Dr. Brian Skotko and the clinical and research teams from the Down Syndrome Program at Massachusetts General Hospital, a not-for-profit academic hospital affiliated with Harvard Medical School, have created a new online resource called Down Syndrome Clinic to You (DSC2U).

We see DSC2U as a way for families to get up-to-date, personalized health and wellness information for their loved one with Down syndrome. When caregivers access DSC2U online, they will be asked to identify current symptoms in their loved one with Down syndrome along with any past medical or behavioral diagnoses and any recent blood work or diagnostic testing. DSC2U also contains optional sets of questions about nutrition, education, therapies, life skills, and community resources. After submitting the questionnaire, the caregiver’s responses will be analyzed by a computer, based on state-of-the-art guidelines designed by national Down syndrome experts.

The caregiver will instantly receive two personalized documents, accessible through their own password-protected account in DSC2U: one for themselves and one to share with their primary healthcare provider. These documents contain customized suggestions that are designed to help their loved one get healthcare tailored to their own specific needs. The documents are based on the caregiver’s answers to the DSC2U survey, and draw on national guidelines for the care of persons with Down syndrome.

DSC2U does not offer direct access to physicians at Massachusetts General Hospital, nor does it offer caregivers access to MGH physicians by e-mail, text, phone, or videoconference. DSC2U offers instead the most current recommendations and resources to caregivers through personalized online documents.

Learn more by watching this video on YouTube (available in English and Spanish) or by visiting the webpage, dsc2u.org.